Could you be suffering B12 deficiency?

Ailsa Frank's own B12 health story

I am a hypnotherapist, and the author of the self-help book Cut the Crap and Feel Amazing. I have helped thousands of people to overcome all sorts of issues including finding health solutions.  I wanted to share my own health story to get the information across to other people who may be affected by the same condition, vitamin B12 deficiency or Pernicious anaemia. Are you searching for an answer to what your symptoms mean?

A visit to my Doctor

Back in September 2011 I first mentioned to the GP that I was feeling incredibly tired, and I had a sore tongue. The Doctor dismissed my symptoms at this stage as nothing.  Then two months later in November 2011, I mentioned again about the overwhelming tiredness, my extremely painful tongue and a thirst problem. He tested for diabetes and B12 deficiency, but the results came back as normal.  I continued to get worse, and over the following six months I visited the GP several more times. 

The symptoms meant I would get up in the morning, but by eleven o'clock I was washed out. Then again around 4 pm, I would feel overwhelming exhaustion.  The Doctor was very patronising as if he thought I was attention seeking by coming into the surgery. I explained how I had aged overnight. My back ached. I had a constant headache at the rear of the left side of my head, wheezy breathlessness (in particular, going upstairs for which he gave me an asthma inhaler which made no difference). I had a prickly cough in my throat and inside my chest which was worse during the night. My hair had begun falling out unusually in clumps. I was experiencing memory loss on and off throughout the day. I had a balance problem often stumbling into things. I was suffering constant chest pain around the heart area. In my hands and feet, I had numbness, heaviness and nerve pains. And my hip joints were painful.

The Doctor suggested I was depressed but as a hypnotherapist treating other people for depression and able to use self-hypnosis myself I knew it was not depression.  He got me to fill in a depression questionnaire which identified I was not depressed, but he still ignored me. He suggested I had carpel tunnel syndrome in my hands, so I went to get wrist splints at the physiotherapy dept of the local Hospital.  The Physiotherapist gave me exercises to do, but my hands continued to get worse.  After three months the Physio was surprised not to see any improvements. By now I was going downhill rapidly, so the physiotherapist referred me back to the GP.

Diagnosis:

In September 2012, by chance I spoke to an elderly relative who has Pernicious anaemia (PA), I went on the Pernicious anaemia website to help her get some information. When I saw the symptoms listed I discovered they were the same as my own.  At first, I thought it was coincidence, but after further investigation, I decided to try vitamin B12 patches (in October 2012) and later went privately to get an infusion of B12 and B12 injections. 

Treatment:

I then began injecting twice per day combining this with taking folic acid tablets to help the vitamin B12 absorb.  Within 24 hours my balance problem had stopped. I then began to breathe correctly, and over the coming months, I started to get better. Since 2014 I stopped injecting B12, and I replaced this with applying four  B12 vitamin skin patches daily.  I now use a vitamin D skin patch occasionally, and I have found that being in the sun helps me too. The skin patches work by bypassing the stomach as the B12 or other vitamins absorb through the skin. I also take a tablet form B100 complex, magnesium, CoQ10 from time to time. I soak in an Epsom salt bath once per week to boost magnesium. I am on a gluten free diet as I found out I am celiac (coeliac) gluten intolerant, which apparently can contribute to the loss of ability to absorb vitamin B12 through the gut.

Pernicious anaemia Society

Visit the Pernicious society for further information http://www.pernicious-anaemia-society.org/

Symptoms - do you suffer from some of the following?

Common/early symptoms

  • Shortness of breath – ‘the sighs’, breathlessness, wheezy cough
  • Extreme fatigue (thinking I must go to sleep)
  • Brain fuzziness (forgetting words)
  • Poor concentration
  • Short-term memory loss (not remembering recent things or whether you just said something)
  • Confusion
  • Forgetting names of objects (knowing you know it but don't)
  • Clumsiness/lack of coordination (dropping things)
  • Brittle, flaky nails; dry skin
  • Mood swings, heightened emotions (irritable or angry or crying)
  • Thirsty
  • Sore tongue (tip of your tongue is burning with pain)
  • Shivers over the body, or feeling cold (a ripple of shivers)
  • M.E. symptoms (fatigue and pain)

 Neurological symptoms

  • Balance problems (when you close your eyes you may feel like you are falling backwards)
  • Dizzy/faint 
  • Frequently bumping into things, stumbling to the side
  • General unsteadiness
  • Inability to stand up with eyes closed or in the dark
  • Numbness/tingling – especially in hands, arms, legs, feet
  • Tinnitus – ringing in the ears (nerve damage in the brain  

Less common symptoms

  • Irritability/frustration/impatience; desire for isolation and quiet; with an aversion to bright lights and crowded spaces
  • Unaccountable and sudden diarrhoea often reported following a spell of constipation
  • Sleep disturbance
  • Fungal feet
  • Bladder irritation or painful sex and sensitive during cervical smears
  • Even though the patient is exhausted, is unable to sleep
  • Waking up still tired, even after many hours of sleep
  • Hair loss – can range from moderate to severe; premature greying of hair
  • Poor digestion
  • Burning legs and feet – Grierson-Gopalan Syndrome
  • Neuropathic pain/fibromyalgia – often on only one side of the body
  • Vertigo – inability to cope with heights, linked to the need for a visual reference as compensation for damage to the brain’s balance mechanism
  • Hypo- or hyperthyroidism – almost exclusively among females
  • Psoriasis/eczema/acne
  • Rosacea – a reddening of the skin around the nose and cheeks
  • Arrhythmia – irregular, fast or slow heartbeat
  • Rheumatoid Arthritis
  • Coeliac disease – sensitivity to wheat and/or wheat products
  • Myasthenia Gravis – weak muscles leading to problems swallowing, chewing and opening eye(s)
  • Vitiligo – white patches that develop on the skin
  • Psoriatic Arthritis

See more at http://www.pernicious-anaemia-society.org/pa-symptoms.php

Discoveries:

I did further research and discovered that vitamin B12 is commonly available as injections in Germany; you can buy injections over the chemist counter. In Japan, they give vitamin B12 injections to anyone whose blood level is 500 whereas in the UK they don't give vitamin B12 injections with the  NHS until your blood level is 160.  In Japan, there is no dementia, and some believe this is due to the vitamin B12 given early.

The deficiency causes the neurons in your nerves to die which is what causes the pain in hands and feet and balance and memory problems.

Vitamin B12 is a water-soluble vitamin which you cannot overdose on, but it is not on offer through the NHS unless you have a low blood reading or anaemia with it a low B12 level which is called Pernicious Anaemia or PA. 

Current testing is believed to be insufficient.

My Great Grandfather died of Pernicious Anaemia in 1934. He had been in a wheelchair for several years due to pernicious anaemia. After he died, relatives found bags of powdered blood which he had been given by the NHS to sprinkle on his food to boost his B12. He was unaware that the powder was not making any difference.  As a few months after his passing, scientists discovered that vitamin B12 needs to be injected directly into skin and not taken orally, as the body does not always absorb or process vitamin B12 properly in the gut. 

Further Information:

Doctors don't always listen to people who are suffering from low B12 symptoms. It can take up to ten years to get a B12 deficiency or Pernicious anaemia diagnosis, only once symptoms become more advanced. Some people have high B12 levels but do not process the vitamin correctly.

Many people need an injection daily, but the NHS often only gives this once per month even when you are diagnosed with pernicious anaemia or B12 deficiency.

Could the NHS be spending a lot of money testing people for other illnesses when it is a vitamin B12 deficiency which explains the long list of symptoms?

It is estimated:

1 in 30 people under the age of 50 yrs is believed to have a vitamin B12 deficiency.

1 in 16 over the age of 50 yrs are believed to have a vitamin B12 deficiency.

People with celiac disease (coeliac) or wheat intolerances are perhaps more prone to a vitamin B12 deficiency due to not absorbing nutrients correctly.

(Always consult a medical professional)

Click here to see the article about my B12 story in Pick Me UP magazine Pick Me Up logo

Click here Let Go of Health Worries Let Go of Health Worries - 10 Minutes Daily hypnosis download

Click here to read my chapter on health Cut the Crap and Feel Amazing Book

Read Mark's B12 story

My symptoms started about ten years ago with anxiety and panic attacks on a holiday. Since then I suffered from symptoms which included brain fog, dizziness, not being mentally astute, breathing issues, constipation and diarrhoea. Then two and a half years ago I had a mental breakdown due to these symptoms and the B12 condition. In March of this year, I had ten blood tests completed; one showed a B12 deficiency with a reading of 123. I immediately knew this was low as the NHS guidelines were 180-200. But the locum GP said the reading was fine, even though other countries abroad think the levels should be a minimum of 500. I firmly believe that GP's do not investigate early enough to combat these issues and symptoms when the readings are far too low.

Since finding the information on your website, Ailsa, I have a better understanding of my symptoms and, as it stands, I will be taking my first injections as of April 10th.  I am hoping the onset of these injections will help me to improve. I am taking B12 methyl 5000 patches to start the process off and will be working hard to get my levels of B!2 to a maximum. A note to whoever reads this if you are suffering initially with mental issues and stress it is very worth asking your doctor for a B12 test to check you are not deficient in this vital vitamin. The deficiency may be causing your mental health issues. I wish I had known earlier the connection between B12 blood and mental health and the many other symptoms.

Once I started taking the vitamin B12 my symptoms began to get better within days. Six months on after using the B12 patches and having some B12 injections my B12 vitamin levels have risen to 700, and I am feeling well. I am carrying on using the B12 patches, and have the odd injection too.

Read Sam's story

My symptoms included painful hips, my nerves on edge and pains in my fingers and feet. The doctor told me I had depression but I tried to explain it' was the symptoms causing me these feelings not me being depressed. I started the B12 patches having read about B12 deficiency now my hips feel fine, and the nerve pains have gone.

Read Amy' story

I was constantly tearful and with my nerves on edge, exhausted and in pain. But the B12 patches and taking liquid B12 under my tongue has helped to clear my symptoms. I stopped taking the B12 after a few weeks then found the symptoms crept back. So I started to use the B12 again, and the symptoms went away again, so I am carrying on to keep well.

I will be happy to answer any question you have about B12 deficiency, best wishes Ailsa

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